Category Archives: Advocacy & Partnerships

Advocacy for Palliative Care during COVID-19

(Updated May 25, 2020) The CSPCP Board and staff have been working hard to bring palliative care issues to as many national planning tables as possible. We are actively involved in a variety of advocacy issues, including drug shortages, access to PPE, and palliative care standards and education needed for COVID-19.

On April 22, The CSPCP sent a brief “Immediate Issues and Recommendations Regarding Provision of Palliative Care During the COVID-19 Pandemic”to the federal Standing Committee on Health, Health Canada, the federal Ministry of Health, and the CMA. The response has been impressively fast. Updated examples:

Palliative Care Drug Shortages. On the day the brief was circulated, the CSPCP was invited to join a new Tier Assignment Committee (TAC)” for Palliative Care Drugs that is being struck by the Drug Shortages Unit at Health Canada. Its first meeting took place on April 28th. The CSPCP provided asummary of issuesand requested that phenobarbital and methotrimeprazine be considered for Tier 3 status*. These drugs have now been added. The team is looking closely at supply and distribution of these drugs and working with a multi-stakeholder group to mitigate. Reports from CSPCP members indicate that there have already been improvements in the supply. We are working with many partners to keep it that way.*

Personal Protective Equipment for Palliative Care. Health Canada and Public Services and Procurement Canada (PSPC), with the support of Global Affairs and at the advice of the Public Health Agency of Canada (PHAC), are leading efforts on PPE procurement nationally and internationally. They are also supporting the retooling of national industry for the production of PPE, as well as preparing guidance and supports for decontamination and re-use of respirators. The CMA represents physicians with Health Canada and PHAC, individually as well as on various committees. The CMA and the federal government agencies are aware of the PPE shortages that palliative care teams have encountered, especially in community but also in hospitals. They are working to facilitate equitable access to PPEs in the challenging context of national and worldwide shortages.*

Public Health Agency of Canada.
The CSPCP was recently added to a stakeholder group that is engaging with the Public Health Agency of Canada (PHAC). We attended a meeting Friday, May 1st where PHAC updated participants on latest evidence and recommendations which are summarized in their publicly-posted Guidance Documents for Coronavirus Disease.

Palliative care is included in the PHAC guidelines as a consideration for older persons, but there is no mention of it for other age groups. The CSPCP submitted input to PHACasking to include a palliative approach to care for all people with difficult-to-treat symptoms, regardless of age. We heard back immediately and were invited to review recommendations that are being developed for long term care. Our input has also gone to other appropriate groups with in PHAC.

Finances. The CSPCP prepared two proposals seeking support to expand our services to CSPCP members and other physicians. We have also written twice to a number of federal leaders, including Bill Morneau about the impact of COVID-19 on our finances and have requested financial assistance.

*To report shortages of medications and/or personal protective equipment in palliative care settings, contact Kim Taylor ed@cspcp.ca

CSPCP in the news January 2020

On behalf of the CSPCP, President Leonie Herx advocates for maintaining hospice palliative care resources in the ongoing dispute between Delta Hospice Society and Fraser Health in BC.

https://www.ctvnews.ca/health/standoff-between-b-c-and-hospice-refusing-to-offer-assisted-dying-1.4773755

https://www.catholicnewsagency.com/news/perform-euthanasia-or-lose-government-funding-canadian-hospice-told-18627

Joint statement from CHPCA and CSPCP regarding Palliative Care and MAiD

(Nov 27, 2019) The Canadian Hospice Palliative Care Association (CHPCA) and the Canadian Society of Palliative Care Physicians (CSPCP) released a joint statement and call to action regarding the ongoing confusion amongst the general public about Palliative Care and Medical Assistance in Dying.

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This statement has been endorsed by international palliative care organizations, including the International Association of Hospice Palliative Care (IAHPC) and the World Hospice Palliative Care Association (WHPCA). It has also been endorsed by the founder of palliative care in Canada, Dr. Balfour Mount, and internationally well-respected palliative care physicians such as Dr. Eduardo Bruera. You can read Dr. Mount’s message here.

If you and/or your organization would like to endorse this statement, you may do so here: Endorsement submission form

CSPCP response to CMAJ article: Canadian Guideline for Parkinson Disease

On October 18th, 2019, the CMAJ published a response from the CSPCP regarding the article Canadian Guideline for Parkinson Disease. Our response provides clarification about Palliative Care & MAiD. Please share amongst your networks as you see fit.

Link to response: https://www.cmaj.ca/content/191/36/E989/tab-e-letters

CSPCP defends rights of people with disabilities

(Oct 2019) The CSPCP is one of the 65+ organizations calling for an appeal of the Quebec Superior Court’s Decision re Truchon and Gladu. This open letter, signed by members and supporters of the disability rights community, outlines that we need an appeal to: 1) protect equality and inclusion, 2) prevent negative stereotypes and stigma, and 3) uphold article 10 of the UN Convention of the Right of Persons with Disabilities. As it stand, the Quebec court decision on medical assistance in dying may entrench stereotypes and exacerbate stigma for Canadians with disabilities, contributing to the adversity and oppression experienced by this vulnerable group.

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