On October 18th, 2019, the CMAJ published a response from the CSPCP regarding the article Canadian Guideline for Parkinson Disease. Our response provides clarification about Palliative Care & MAiD. Please share amongst your networks as you see fit.
Link to response: https://www.cmaj.ca/content/191/36/E989/tab-e-letters
(Oct 2019) The CSPCP is one of the 65+ organizations calling for an appeal of the Quebec Superior Court’s Decision re Truchon and Gladu. This open letter, signed by members and supporters of the disability rights community, outlines that we need an appeal to: 1) protect equality and inclusion, 2) prevent negative stereotypes and stigma, and 3) uphold article 10 of the UN Convention of the Right of Persons with Disabilities. As it stand, the Quebec court decision on medical assistance in dying may entrench stereotypes and exacerbate stigma for Canadians with disabilities, contributing to the adversity and oppression experienced by this vulnerable group.
On May 10, 2019, federal Health Minister Ginette Petitpas Taylor announced funding to help strengthen palliative care in Canada. (View press release here).
Three national organizations will receive more than $4.5 million in funding:
- $1.9 million over three years to the Canadian Hospice Palliative Care Association to help Canadians prepare for their future health care needs, including through public education and awareness, community workshops, and a renewed strategy to promote advance care planning.
- $2 million over three years to the Canadian Virtual Hospice to expand existing virtual services and resources for palliative care and grief support to meet the needs of underserved communities, including families caring for a dying child, Francophones, and LGBTQ2 communities.
- $600,000 over two years to the Canadian Home Care Association to help improve delivery of palliative care at home and communication with patients, families, and caregivers.
Thank you to the Ministry of Health for supporting this important work — and congratulations to the recipients!
(March 2019) The CSPCP joined ten other organizations in a letter to thank Ontario Minister of Health and Long Term Care, Christine Elliott, for her support of Dan’s Law (Bill 73) in Ontario.
The original bill, Dan’s Law, was a joint effort of MPP Lisa Gretzky and Dr. Darren Cargill, a palliative care physician in Windsor. The goal is to remove the three-month waiting period for OHIP funded palliative care and home care for Canadian residents who move to or return to Ontario. If the Bill passes, it will help many patients and families, and it could set a precedent for other provinces that have waiting periods. The Bill has passed First Reading.
Link to letter:Read More
Link to Bill 73: https://www.ola.org/en/legislative-business/bills/parliament-42/session-1/bill-73
(March 4, 2019) Recently-released Model Standards for Pharmacy Compounding for Non-Hazardous Sterile Preparations from the National Association of Pharmacy Regulatory Authorities (NAPRA) stipulate that community pharmacies must use a Before Use Date of twelve hours for pre-filled medication syringes. This significantly affects our ability to provide care for patients with palliative care needs in the home, especially at end of life.
The CSPCP and Canadian Hospice Palliative Care Association jointly wrote to NAPRA on February 19, 2019, requesting an exception to this standard for palliative care. The letter describes the reasons why care is affected and what the impact is for patients, caregivers, and health care providers. Copies of the letter were sent to Health Canada, to their federal/provincial/territorial/palliative care group, and to the heads of the provincial Sections of Palliative Medicine.
Read the letter
Response from NAPRA