(March 4, 2019) Recently-released Model Standards for Pharmacy Compounding for Non-Hazardous Sterile Preparations from the National Association of Pharmacy Regulatory Authorities (NAPRA) stipulate that community pharmacies must use a Before Use Date of twelve hours for pre-filled medication syringes. This significantly affects our ability to provide care for patients with palliative care needs in the home, especially at end of life.
The CSPCP and Canadian Hospice Palliative Care Association jointly wrote to NAPRA on February 19, 2019, requesting an exception to this standard for palliative care. The letter describes the reasons why care is affected and what the impact is for patients, caregivers, and health care providers. Copies of the letter were sent to Health Canada, to their federal/provincial/territorial/ palliative care group, and to the heads of the provincial Sections of Palliative Medicine. We are currently awaiting a response and will provide updates when available.
Read the letter
Representatives from the Palliative 4 Canadians (P4C) group met with Health Canada on January 30, 2019 to begin discussing implementation of the national Framework on Palliative Care in Canada. The Framework was tabled in parliament on December 4, 2018 by the Honourable Ginette Petitpas Taylor, federal Minister of Health, after a year-long consultation with many stakeholders including the CSPCP. Health Canada reported that they will now develop a Framework implementation plan that aims to action the guiding principles and goals reflected in the Framework. Their goal is to have the plan ready by late Spring 2019. Health Canada also plans to establish an Office of Palliative Care to provide high level coordination of palliative care activities going forward. P4C shared suggestions on how the Office could be structured to optimize efficiency and results.
We look forward to seeing how the implementation unfolds and the CSPCP will continue to be an active partner. It is heartening to have federal politicians and Health Canada assist all of us with improving palliative care for all Canadians.
*Canada’s four national palliative care organizations – CSPCP, CHPCA, Canadian Virtual Hospice and Pallium Canada
The Canadian Hospice Palliative Care Association has released a campaign kit for National Advance Care Planning Day on April 16, 2018. This year’s kit includes templates for announcing ACP Day in emails, news releases, newsletters, social media, etc., as well as guides, posters, pamphlets, and an inventory of some of our best videos on ACP. Individuals and organizations are welcome to use these material. Questions? Contact Chad Hammond at CHPCA: CHammond@chpca.net
One of the Missions in the CSPCP’s Vision, Mission and Goals is to “Advance the quality of life of patients and families living with life-limiting conditions from time of diagnosis through death and bereavement by advancing the field of palliative medicine.”
The CSPCP is proud to participate in Canada’s First National Bereavement Day on November 21, 2017, organized by the Canadian Hospice Palliative Care Association (CHPCA). We encourage all physicians to join us in using the tools and materials on CHPCA National Bereavement Day website and in using the official hashtag #GriefDayCA2017 to promote the day on social media.
On National Bereavement Day, Canadian Virtual Hospice (CVH) will release new materials for supporting children and youth – “KidsGrief”. To be notified when the site goes live, enter your email at http://KidsGrief.ca.
CVH is providing a FREE public web forum called KidsGrief Q&A on November 16 from 2:00 – 3:00 EST. Andrea Warnick, a national children’s grief expert, will answer questions about supporting children and youth who are grieving a death or an expected death. To participate, email: KidsGriefQA@virtualhospice.ca OR to access the webinar at the time of the event link in here: https://canadianvirtualhospice.adobeconnect.com/kidsgriefnov/
Every month the Canadian Hospice Palliative Care Association hosts an Online Event on different hospice palliative care topics.
For a listing of upcoming events, click here